The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. We are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995). The Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility.
The American Heart Association is the nation's oldest and largest voluntary organization dedicated to fighting heart disease and stroke. To improve the lives of all Americans, we provide public health education in a variety of ways. We're the nation's leader in CPR education training. We help people understand the importance of healthy lifestyle choices. We provide science-based treatment guidelines to healthcare professionals to help them provide quality care to their patients. We educate lawmakers, policymakers and the public as we advocate for changes to protect and improve the health of our communities. We have funded more than $3.8 billion in heart disease and stroke research, more than any organization outside the federal government.
Cerebral Palsy describes a group of permanent disorders of the development of movement and posture, causing activity limitations, attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The Cerebral Palsy Foundation process is to find, define and address Moments of Impact – the times at which interventions and insights, if properly implemented, have the power to improve lives. We then work to better understand what is needed to effect change and the best ways to implement it. We seek out the best thinkers in an area, and form collaborative networks to work together and bring about transformation. Finally, we share our work with others so it will have the greatest possible impact.
NAMI (National Alliance on Mental Illness) is the nation's largest grassroots organization for people with mental illness and their families. Founded in 1979, NAMI has affiliates in every state and in more than 900 local communities across the country. NAMI recognizes that the key concepts of recovery, resiliency and support are essential to improving the wellness and quality of life of all persons affected by mental illness. NAMI members and friends work to fulfill our mission by providing support, education, and advocacy. Our many activities include: public education and information activities, peer education and support, raising awareness and fighting stigma, and state and federal advocacy.
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support. The ALS Association's ultimate goal is to find treatments and a cure for ALS while helping patients and their families manage the impact of the disease through various programs and services. Our mission priorities include raising public awareness about ALS; a global research program; providing people with ALS access to high-quality care and resources; and advocating for increased funding for ALS research and patient services.
The Pediatric Cancer Research Foundation (PCRF) was established in 1982 to improve the care, quality of life and survival rate of children with malignant diseases. The founders included parents, doctors, friends, and business and community leaders who joined forces to translate laboratory research into immediate treatment for children with cancer. Since its inception, PCRF has raised over $40 million to fund cutting edge research that leads to medically sound treatment protocol for childhood cancers.
The V Foundation for Cancer Research was founded by ESPN and legendary basketball coach Jim Valvano with one goal in mind: to achieve Victory Over Cancer. Since its start in 1993, the V Foundation has awarded over $200 million in cancer research grants nationwide and has grown to become one of the premier supporters of cutting-edge cancer research funds. Due to generous donors, the Foundation has an endowment that covers administrative expenses.
The mission of Dr. Susan Love Research Foundation is to create a future without breast cancer by focusing on cause and prevention. We will meet this challenge by being fast, flexible, and project-based. We will identify needs and determine how these needs can be quickly met, not by emulating existing nonprofit organizations, but by designing a new model specific to the tasks at hand. We will find the most effective route to breast cancer eradication, whether it is in the not-for-profit arena, the for-profit arena, or both. We will approach problems by collaborating and coordinating with other organizations. We will facilitate solutions to be adopted by others.
Founded in 2002, Action for Healthy Kids is a public-private partnership of more than 60 national organizations and government agencies representing education, health, fitness and nutrition. We address the epidemic of overweight, sedentary, and undernourished youth by focusing on changes in schools to improve nutrition and increase physical activity. We work to engage diverse organizations, leaders, and volunteers in actions that foster sound nutrition and good physical activity in children, youth, and schools. Action for Healthy Kids envisions a world where all kids develop the lifelong habits necessary to promote health and learning.